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Spurius

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  1. Spurius

    Happy Birthday

    By Spurius,

    At 9:39 am EST on 5/15/2006, Marian Elizabeth was born. She weighed in at 6lbs, 3.9oz or 2.43 kg and 21 inches in length.
     
    Mom is recovering from C-Section, Marian is in the NICU for observation. Apart from a small problem with low normal blood sugar, a possible small problem with two cervical vertabrae (nothing major, just not complete bone closure yet - the column is intact just the closure/fissure has cartilage right now) and the doctors saying they have to monitor her liver bile ducts a bit closer (but they aren't worried), Marian is doing fine. There will be running a more extensive battery of test on her tomorrow including an echo-cardiogram, EKG, EEG, and an Ultrasound of her head and kidneys.
     
    The poor little girl had to have an IV put in, in case they had to give her fluids for the blood sugar, and it blew on each of her hands so she has one in her foot. But if the tests come back she's as healthy as she appears otherwise...she'll be in the regular nursery tomorrow at some point.
     
    I left the camera at the hospital, otherwise I'd post a picture of her right now. Maybe tomorrow, right now I've been up since 3 am and am going to sign-off.
     
    Happy Birthday everyone, buy a drink and send me the bill...this round is on me.
  2. Spurius
    Well, Marian (note spelling change) is due to be delivered by c-section on May 15th. We'll finally be able to meet (Father/Daughter) and I hope to post a picture here by the end of the month.
     
    So the pre-baby scurrying is going at a good pace....we may actually have everything in place and ready! I've got three weeks of paid "Daddy" leave, so I can be around until Karen is well enough to walk around with a minimum of pain...plus help to keep all the helpful people from driving her more insane.
     
    Almost done with the Etruscan article and with two book reviews (including the Christmas giveaway, finally). I should be able to finish them out while Victor is in daycare during the week. Or at least that is one of my hopes....
     
    Catch you all soon.
  3. Spurius

    Blarrgh

    By Spurius,

    What a week so far, and it ain't half over.
     
    We're moving this weekend to a new place, so we're busy with packing and light moving (we have an overlap of four weeks to move, but we want to get primarily re-located this weekend). I have been working on finishing the new basement as far as we can to make it into a functional room in the evenings ( I hate sanding dry wall mud, especially over my head for the new ceiling) The evenings are for moving light loads too. My shoulders are playing "I surrender..."
     
    Now this afternoon I had to come home early from work with the trots, and I still got to go out and work on drywalling the steps and landing down to the basement tonight ( no I don't do it alone, but I can't let the other two guys do all the work either).
     
    Blaarrrgh.
     
    Oh well, Karen keeps injuring her knee (bad enough it goes out at random times...and falls aren't fun in the sixth-seventh month of pregnancy), Marianne hasn't had any bad news lately but her doctors have enraged us. A vessical on one side of her brain may be too large, but the doctor said, and I quote: " In a normal baby this might be a cause for a little concern, but since we know she will be MRDD there shouldn't be a problem." WTF? And they wonder why we're changing her delivery hospital...
     
    Victor is, well...being an almost 3-year-old. No major problems, other than being the little bundle of energy that he is while both parents are tired, sore and a bit ill.
     
    So, all in all things are about are going as good as possible
     
    Hope things are going well with all of you...see you on the flipside!
  5. Spurius

    The News

    By Spurius,

    We have been through a wringer the last few weeks, but things are looking up.
     
    Mariann's deletions are in a place that will probably avoid most of the major health problems, somewhat confirmed by a more powerful ultra-sound test done Friday last week. That showed no major heart problems (which would be detectable by now) and her kidneys (enlarged two weeks ago) show normal.
     
    With luck, there will be no major medical problems.
     
    Even better, while the deletions do cause retardation problems, we are in contact with a couple of people whose children have that type of deletion. They are saying that while they are slow (like a nine-year-old in second grade) they are not severely affected. We have our fingers crossed on this too.
     
    Life is slowly creeping back. I can concentrate on my job and start working on history again. You should be hearing more from me now.
     
    Peace.
  6. Spurius

    No Easy Way

    By Spurius,

    A joyous new year to you all.
     
    I am putting this here so that only those who wish to make the effort will be reading.
     
    I am writing this under a strain that I never thought I could bear, but I am. It is about our daughter, Mariann Elizabeth. She is in trouble and we will probably be losing her.
     
    Tests came back last Thursday that she has deletions on one arm of her chromosome make-up, specifically the P4 arm. These deletions lead to a widespread number of problems including major heart, lung and liver problems...seizure disorders, micro-encephaly, severe to profound mental retardation. Between 30-50% of these children die in the first year of life and most are dead by 18 years old. A few learn to walk, none learn to talk.
     
    The only way I can even discuss this right now is to be very clinical, for that I apologize.
     
    We are broken hearted and the world seems kind of gray right now. I will be absent for a bit, or perhaps terse if I leave comments. Again I apologize. I like and respect the lot of you on this site, so I thought I shouldn't leave you hanging.
     
    But really, and I do mean this, have a happy new year. While our pain is very fresh and may go on for a while...it will pass as everyday routines come back. And, despite our dour, outlook the sun will rise. Right now our son Victor lights the way and Mariann will lead us down her path as far as she wishes to take us. You will be reading more about her here if you wish.
     
    Peace to everyone and thank you for the names and congradulations.
     
    As historians we know that history is what we make it to be...take from it what you wish and keep it with you.
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